01-03-2008
|
#1 (permalink)
|
|
Senior Member
Formula Extreme
Join Date: Jul 2007
Posts: 687
|
Scarlett Fever 2 March 9th 2008
The ROAD DEVILS & LAST ORIGINALS CAR CLUBS are putting together a benefit for a beautiful 14 year old girl with Rett Syndrome.
She is the daughter of Bob & Rosa James and the cost of her care is overwhelming! Everyone falls in love the minute they meet her and you will too!
The benefit will be at the DNA LOUNGE in San Francisco on March 9, 2008, and will feature a bunch of rockin' bands -
Here's a sneak peek at a few of the bands who will be rockin' the Benefit!!! More to be announced later...
This is just to give you a little taste of the ROCK we will have goin' on that day...
Check this link www.myspace.com/delbombers
Check this link www.myspace.com/stigma13
check this link www.myspace.com/notfornot
We will also have a raffle, and silent auction.
We need your help and contributions to help this very worthy cause! There are Car Clubs and Motorcycle Clubs joining us in supporting her, as well as regular working class people (like us) Flyers and more info as it comes in...
We will have both a raffle and a silent auction with BANGIN' prizes, including motorcycle parts, hot rod parts and accessories, tattoo time, t-shirts, art, and rock memorabilia from some of our FAVORITE rockstars!!!
Please contact us via e-mail to contribute to the benefit.
We are colecting donations of gifts for the auction and raffle, as well as
cash to buy things we need for the benefit party and for her
special medical needs fund.
Scarlett has a myspace page where you can see pictures of her and read more about her. It is moderated by her parents.
http://www.myspace.com/misscarlett13
She also has a Paypal account for cash donations to her special medical needs fund.
Just go to www.paypal.com , and donate to Scarlettsspecialneedsfund@yahoo.com
What is Rett syndrome?
Rett syndrome is a childhood neurodevelopmental disorder characterized by normal early development followed by loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, gait abnormalities, seizures, and mental retardation. It affects females almost exclusively.
The course of Rett syndrome, including the age of onset and the severity of symptoms, varies from child to child. Before the symptoms begin, however, the child appears to grow and develop normally. Then, gradually, mental and physical symptoms appear. Hypotonia (loss of muscle tone) is usually the first symptom. As the syndrome progresses, the child loses purposeful use of her hands and the ability to speak. Other early symptoms may include problems crawling or walking and diminished eye contact. The loss of functional use of the hands is followed by compulsive hand movements such as wringing and washing. The onset of this period of regression is sometimes sudden.
Another symptom, apraxia — the inability to perform motor functions — is perhaps the most severely disabling feature of Rett syndrome, interfering with every body movement, including eye gaze and speech.
Individuals with Rett syndrome often exhibit autistic-like behaviors in the early stages. Other symptoms may include toe walking; sleep problems; wide-based gait; teeth grinding and difficulty chewing; slowed growth; seizures; cognitive disabilities; and breathing difficulties while awake such as hyperventilation, apnea (breath holding), and air swallowing.
The following website will give you more information about Rett Syndrome: http://www.ninds.nih.gov/disorders/rett/detail_rett.htm
__________________
...................
|
|
|
Linear Mode
